|
Time
|
Topic
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Speaker
|
|
Session I: |
Overview and Epidemiology of Adult and Pediatric Cancer Diseases: “Experiences Gained and Lessons Learned” |
Moderators: Dr. Reyad Mohsen, Dr. Abeer Alsayegh, Dr. Noora Alhammadi |
|
08:00-09:00
|
Registration & Breakfast
|
|
|
09:00-09:15
|
Landscape of cancer genetic in Qatar current and future prospective
|
Dr. Salha Bujassoum Al Bader
Sr consultant medical oncologist / clinical leads of high risk - cancer genetic program / director of medical oncology fellowship training. Hamad Medical Corporation Qatar
|
|
09:15-09:30
|
Overview on pediatric rare cancers: experience from Qatar
|
Dr. Naima Almulla
Sr Consultant, Pediatric Hematology and Oncology, Sidra Medicine
|
|
09:30-09:45
|
Identification and characterization of rare pediatric brain tumor entities
|
Dr. David Jones
Group Leader - Pediatric Glioma Research, Hopp Children’s Cancer Center Heidelberg (KiTZ)
|
|
09:45-10:00
|
Rare cancer predisposition syndromes in children and adults
|
Dr. Nicola Dikow
Consultant, Institute of Human Genetics University of Heidelberg
|
|
10:00-11:00
|
Short coffee break followed by
Welcome and Opening Remarks from Dr. Saad Al Kaabi
Keynote Lecture: German Center for Rare Diseases
(Prof. Annette Grueters-Kieslich)
|
Dr. Saad Al Kaabi
Conference Chairperson
Prof. Annette Grueters-Kieslich
|
|
Session II
|
Prevention and Ethical Considerations in Genomic Medicine
|
Moderators: Dr. Tawfeg Ben Omran, Karen El-Akouri
|
|
11:00-11:15
|
Ethical and cultural considerations in genomic medicine
|
Dr. Al Hareth Al Khater
Deputy Medical Director, National Center for Cancer Care & Research, Chairman, Corporate Healthcare Ethics Committee, Hamad Medical Corporation
|
|
11:15-11:30
|
Islamic ethics in the genomic era
|
Dr. Mohamed Ghaly
Professor of Islam and Biomedical Ethics Research Center for Islamic Legislation & Ethics (CILE), College of Islamic Studies (CIS), Hamad Bin Khalifa University (HBKU)
|
|
11:30-11:45
|
Premarital genetic screening and counseling in Qatar
|
Dr. Mariam Al Mulla
Genetic Counselor, Department of Pediatrics, Hamad Medical Corporation
|
|
11:45-12:00
|
Prevention programs for hereditary cancer in Qatar
|
Dr. Reem Al Sulaiman
Interim Deputy Chair Medical Genetics Department, HMC
Assistant Chair of Rare Disease and Research Committee, HMC
|
|
12:00-13:30
|
Prayer & Lunch Break
|
|
|
Session III
|
Therapeutic Opportunities in the Era of Genomic Medicine: “Challenges and Success”
|
Moderators: Dr. Khaled Zamel, Dr. Javid Gaziev, Dr. Amna Gamil
|
|
13:30-13:45
|
An emerging treatment option for spinal muscular atrophy: “from lethality to cure”
|
Dr. Tawfeg Ben-Omran
MD Clinical and Metabolic Genetic Hamad Medical Corporation and Sidra Medicine Associate Professor, Weill Cornell Medical College
|
|
13:45-14:00
|
Gene therapy for hemoglobinopathies
|
Prof. Andreas Kulozik
Medical Director, Department of Pediatric Oncology, Hematology and Immunology, University of Heidelberg
|
|
14:00-14:15
|
Anemia of inflammation & iron in macrophages
|
Prof. Martina Muckenthaler
Department of Pediatric Oncology, Hematology, Immunology & Pulmonology, University of Heidelberg
|
|
14:15-14:30
|
Therapeutic advances in neurotransmitter disorders
|
Prof. Thomas Opladen
Deputy Head, Pediatric Neurology and Metabolic Medicine University of Heidelberg
|
|
14:30-14:45
|
Towards precision medicine in skin diseases
|
Prof. Martin Steinhoff
Chairman, Dept. of Dermatology & Venereology Director, HMC Translational Research Institute (iTRI) Director, HMC Institute for Dermatology Center of Excellence Chronic Skin Inflammation
|
|
Session IV
|
Living with Rare Diseases: Parents’ Experiences
|
Moderators: Dr. Tawfeg Ben Omran, Dr. Reem Alsulaiman
|
|
14:45-16:00
|
Parent 1 & 2
|
|
| |
Closing of Day 1
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